Thursday, January 28, 2021

Engaging Young People and Families in Research - Workshop 15 October 2016

                                         Time & date:  Saturday 15th October 2016, 9.30 am to 4.30 pm

                                         Venue:           Mercure Hotel, Sydney

                                         Location:        818 - 820 George Street, Sydney NSW 2000, Australia

                                         Cost:               Free registration (inclusive of catering)


This national workshop brings together young people, families, communities, and health professionals to learn and discuss how to engage young people with chronic conditions and their families in research. At this event, you will hear from Sally Crowe who is a world-recognised expert in patient engagement, a member of the British Medical Journal’s Patient Panel and former Co-Chair of the UK-based James Lind Alliance (JLA), which facilitates research priority setting partnerships globally. This workshop is hosted by BT4K, an initiative funded by the NSW Health (Office of Health and Medical Research), aimed to increase the number, relevance and quality of clinical trials in young people.

Who can attend? Young people (aged 11-18 years) with a chronic condition, adult family members (of children and young people aged 0-18 years), caregivers, patient advocates, healthcare providers, policy makers, and researchers.

When? 9:30 am – 4:30 pm Saturday 15th October 2016

Where? Mercure Hotel, Sydney NSW, Australia

Registration: Registration is free and limited to 80 participants. Please register your interest here http://www.thekaleidoscopeproject.com.au/national-forum-2016/and a confirmation email will be sent to you within three days of submission.

If you have any questions, email Dr Pamela Lopez-Vargas at This email address is being protected from spambots. You need JavaScript enabled to view it.

The Kaleidoscope Project

Supported by NSW Ministry of Health

Better Treatment 4 Kids Network

The Children’s Hospital at Westmead

The University of Sydney